Sorry to post bad news but it's my daughter and I want to get as many prayers as possible.
She's not even two and is undergoing her second surgery in an attempt to fight off Melanoma.
I typically don't bother people with things like this but it's for my daughter. If it was for me, I wouldn't even bother.
As you can guess, I'm a mess. She's Stage IIIc currently and it could go either way.
Thanks in advance for your prayers.
Please spread the word.
EDIT: If you could reply here so I know how many people are pulling for her....even if you don't pray...that will help.
How this started: She was born with a type of birth mark on her back called a nevus. At her age the doctors told us it's more of a cosmetic decision to have it removed. I listened. They said that in older kids there is a potential for cancer but not in her age group....very rare. They advised that we wait until she was 2 years old to remove it if we decided to go that route, so we waited. Little did I know that it would turn into this. My advice is to remove any threat to your child even if there is a .000000000000000000000000000000000000001% risk...it's never worth it. Lesson #1, I wish I would have been more vain and said that "thing" has to go immediately. Well, all was going fine then one day we noticed that an area of the nevus started to change. We made an appointment at the specialists and it took a while to get her in. No one thought it was a threat but they wanted to do tests. We took her in and they took a piece and sent it to the lab. MISTAKE/LESSON #2...if there is any threat to your child...tell the doctors NOT to take a little piece and examine it...tell them to TAKE THE ENTIRE THING then do what they need to do, not leave pieces behind that could yield further issues. If they would have taken the entire thing out, the risk would have been greatly reduced. The longer you leave cancer cells in your body the worse it can become. After the tests came back as positive for cancer they immediately scheduled the operation to have it and a significant area around it removed for further testing. That happened, the rest of it went off to a lab and the perimeter came back with no cancerous cells. They also took out a few lymph nodes but those came back positive for cancer cells. As soon as those results came back she went back in for her second surgery.
Update: 09/14/2008. People have been asking me so I'm posting an update. She's undergone two surgeries. The second was to remove additional areas of potential threat and also all the lymph nodes under each arm. The cancer could have spread to these lymph nodes and they had to remove them in case it was contained there. I'm praying it was. As for how she's doing now, she has 4 drain tubes to drain fluids from her body while she recovers. One under each arm and two on her back. As the doctors explained, after surgery there are voids where the body tries to fill with fluid and they need to keep that fluid from settling. She had a couple of bad days with pain from these tubes that are going into her body but the past couple of days she's been doing wonderful. We have to stay on top of her to ensure she doesn't hurt herself. Right now the lymph nodes that were removed have been sent off for further testing and we should have results back sometime next week. She also starts cancer treatments next week in an attempt to cut off or delay any further manifestations in her little body.
Update: 09/17/08. We just got back from the doctor. Got the 4 drain tubes and "bulbs" removed so now she can move more freely and with less supervision. I can also go back to a normal sleep routine since I had to sleep with one eye open to ensure she didn't tangle herself with the plastic tubes when she turned in bed during the night. Big relief here. She also had her CT scan of the brain. We had the surgeon pull the file up as a favor and he said it looked okay BUT that he was not a neurologist nor was the scan officially reviewed yet so we continue to pray and soon we start the aggressive therapy...Interferon Alpha2b. Many side effects but nothing worse than cancer spreading so it's worth the ride for all involved. We now wait for the official results to get back to us and the results of all the lymph nodes that were removed in the second operation. Thank you all and keep praying for her no matter the faith you believe in and if you don't believe in any God please think positive thoughts for my little girl. I'm not too proud to beg when it comes to my child.
Update: 09/17/08 #2. Just got an e-mail from a doctor at the hospital. The results from the lymph node tests came back all negative and the nodes removed during the second operation had no cancer. This is great news for me and my family because statistically it puts the odds back in her favor. We're still moving forward with periodic scans of all her major organs and the cancer treatment, which we're starting next week. Keep praying for her people and thank you....thank you.....thank you!!!
Update: 09/23/08. All is positive but will be getting a little bad for her for the next year. She starts Interferon therapy on Monday. It's going to be an interesting year. Again, thank you all for your continued support. You have no idea how much it helps.
Update: 10/11/08. Thank you all for your continued support. She's not finished her first 2 of 52 week treatment. The first 4 weeks are the worst but she's actually doing extremely well. The only side effects she's demonstrated were high fever the first two days of treatment which we quickly got under control with a Motrin and Tylenol routine and her being more tired because we have to wake up extra early to be at the hospital every single day for her treatment. The first 4 weeks we have to be at the hospital anywhere from 3-7 hours for her treatments. She's doing extremely well and i'm still praying that this treatment is not necessary and that the cancer never made it past her lymph nodes into her body. This treatment doesn't really cure anything...it just prolonges the time before relapse. If the lymph nodes contained it then we're good. After the initial 4 weeks, we start giving her injections three times weekly at the house. This is going to be easier on her as she'll be able to start sleeping in again and taking her naps on time. Her eating habits are a little off as well because the treatments give you a bad taste in your mouth. Luckily for us, we're fortunate enough to be able to cook up a choice of dishes for her keeping her eating. She's gotten picky about what she eats but we're giving her enough choices to keep her eating. We're trying to avoid avoid weight loss which is one side effect but it's typically a result of patience not wanting to eat because food just doesn't taste as good. Kids at this age don't know to eat because they have to until they are starving when stuff like this happens...unless daddy feeds them some of the best Fajita's in town or a savory steak. We have two more weeks of the "hard" treatment and then it eases up on her body a bit because the dosage is reduced for the remaining 11 months.
Update: 10/25/08. Thank you all yet again for your continued support. We've finished the month long daily treatments of heavy interferon dosage. She actually had two small side effects out of all the scary stuff and although we still have 11 more months of treatments that could yield some nasty side effects, she pulled through the heavy part like a champ. Of the 30 days she had 2 with fever which we brought under immediate control using Tylenol and Motrin and then she would get a little flush in the face a few other days but a hydration solution through the portacath in her chest fixed that right away. We had some long days at the hospital and i'm thankful that my customers are understanding. It's been tough but worth the fight and the entire family remains strong. Little Alessandra seems to be the strongest of the bunch, LOL. The grandmothers missed a lot of work because we didn't want to take Alessandra's little brother to the hospital for the long days so they stayed at the house until we returned from her treatments then they shot off to work. Friday was the last day of heavy treatments and now we start treating her at home by giving her three shots a week. We still have to monitor her for side effects, continue to take her in for regular scans of her organs to see if cancer pops up anywhere, and watch her skin to see if there are ANY changes. All in all a small price to pay if the cancer never manifests itself again. I think we've made a decision to remove every mole on her body once she goes back in for the, I hope to God, final surgery. The melanoma can manifest itself in moles much easier than in other areas of the skin and considering what she's already been through, I'm not leaving ANYTHING to chance. Some may think I'm crazy and this may be going too far but you wouldn't understand until you went through this. The odds of her having to go through this were astronomical but it happened. I'm not leaving it to chance and as another member in the forum reminded me, drastic times call for drastic measures. Again, thank you all and I will continue to keep the thread updated for those interested in our fight.
She's not even two and is undergoing her second surgery in an attempt to fight off Melanoma.
I typically don't bother people with things like this but it's for my daughter. If it was for me, I wouldn't even bother.
As you can guess, I'm a mess. She's Stage IIIc currently and it could go either way.
Thanks in advance for your prayers.
Please spread the word.
EDIT: If you could reply here so I know how many people are pulling for her....even if you don't pray...that will help.
How this started: She was born with a type of birth mark on her back called a nevus. At her age the doctors told us it's more of a cosmetic decision to have it removed. I listened. They said that in older kids there is a potential for cancer but not in her age group....very rare. They advised that we wait until she was 2 years old to remove it if we decided to go that route, so we waited. Little did I know that it would turn into this. My advice is to remove any threat to your child even if there is a .000000000000000000000000000000000000001% risk...it's never worth it. Lesson #1, I wish I would have been more vain and said that "thing" has to go immediately. Well, all was going fine then one day we noticed that an area of the nevus started to change. We made an appointment at the specialists and it took a while to get her in. No one thought it was a threat but they wanted to do tests. We took her in and they took a piece and sent it to the lab. MISTAKE/LESSON #2...if there is any threat to your child...tell the doctors NOT to take a little piece and examine it...tell them to TAKE THE ENTIRE THING then do what they need to do, not leave pieces behind that could yield further issues. If they would have taken the entire thing out, the risk would have been greatly reduced. The longer you leave cancer cells in your body the worse it can become. After the tests came back as positive for cancer they immediately scheduled the operation to have it and a significant area around it removed for further testing. That happened, the rest of it went off to a lab and the perimeter came back with no cancerous cells. They also took out a few lymph nodes but those came back positive for cancer cells. As soon as those results came back she went back in for her second surgery.
Update: 09/14/2008. People have been asking me so I'm posting an update. She's undergone two surgeries. The second was to remove additional areas of potential threat and also all the lymph nodes under each arm. The cancer could have spread to these lymph nodes and they had to remove them in case it was contained there. I'm praying it was. As for how she's doing now, she has 4 drain tubes to drain fluids from her body while she recovers. One under each arm and two on her back. As the doctors explained, after surgery there are voids where the body tries to fill with fluid and they need to keep that fluid from settling. She had a couple of bad days with pain from these tubes that are going into her body but the past couple of days she's been doing wonderful. We have to stay on top of her to ensure she doesn't hurt herself. Right now the lymph nodes that were removed have been sent off for further testing and we should have results back sometime next week. She also starts cancer treatments next week in an attempt to cut off or delay any further manifestations in her little body.
Update: 09/17/08. We just got back from the doctor. Got the 4 drain tubes and "bulbs" removed so now she can move more freely and with less supervision. I can also go back to a normal sleep routine since I had to sleep with one eye open to ensure she didn't tangle herself with the plastic tubes when she turned in bed during the night. Big relief here. She also had her CT scan of the brain. We had the surgeon pull the file up as a favor and he said it looked okay BUT that he was not a neurologist nor was the scan officially reviewed yet so we continue to pray and soon we start the aggressive therapy...Interferon Alpha2b. Many side effects but nothing worse than cancer spreading so it's worth the ride for all involved. We now wait for the official results to get back to us and the results of all the lymph nodes that were removed in the second operation. Thank you all and keep praying for her no matter the faith you believe in and if you don't believe in any God please think positive thoughts for my little girl. I'm not too proud to beg when it comes to my child.
Update: 09/17/08 #2. Just got an e-mail from a doctor at the hospital. The results from the lymph node tests came back all negative and the nodes removed during the second operation had no cancer. This is great news for me and my family because statistically it puts the odds back in her favor. We're still moving forward with periodic scans of all her major organs and the cancer treatment, which we're starting next week. Keep praying for her people and thank you....thank you.....thank you!!!
Update: 09/23/08. All is positive but will be getting a little bad for her for the next year. She starts Interferon therapy on Monday. It's going to be an interesting year. Again, thank you all for your continued support. You have no idea how much it helps.
Update: 10/11/08. Thank you all for your continued support. She's not finished her first 2 of 52 week treatment. The first 4 weeks are the worst but she's actually doing extremely well. The only side effects she's demonstrated were high fever the first two days of treatment which we quickly got under control with a Motrin and Tylenol routine and her being more tired because we have to wake up extra early to be at the hospital every single day for her treatment. The first 4 weeks we have to be at the hospital anywhere from 3-7 hours for her treatments. She's doing extremely well and i'm still praying that this treatment is not necessary and that the cancer never made it past her lymph nodes into her body. This treatment doesn't really cure anything...it just prolonges the time before relapse. If the lymph nodes contained it then we're good. After the initial 4 weeks, we start giving her injections three times weekly at the house. This is going to be easier on her as she'll be able to start sleeping in again and taking her naps on time. Her eating habits are a little off as well because the treatments give you a bad taste in your mouth. Luckily for us, we're fortunate enough to be able to cook up a choice of dishes for her keeping her eating. She's gotten picky about what she eats but we're giving her enough choices to keep her eating. We're trying to avoid avoid weight loss which is one side effect but it's typically a result of patience not wanting to eat because food just doesn't taste as good. Kids at this age don't know to eat because they have to until they are starving when stuff like this happens...unless daddy feeds them some of the best Fajita's in town or a savory steak. We have two more weeks of the "hard" treatment and then it eases up on her body a bit because the dosage is reduced for the remaining 11 months.
Update: 10/25/08. Thank you all yet again for your continued support. We've finished the month long daily treatments of heavy interferon dosage. She actually had two small side effects out of all the scary stuff and although we still have 11 more months of treatments that could yield some nasty side effects, she pulled through the heavy part like a champ. Of the 30 days she had 2 with fever which we brought under immediate control using Tylenol and Motrin and then she would get a little flush in the face a few other days but a hydration solution through the portacath in her chest fixed that right away. We had some long days at the hospital and i'm thankful that my customers are understanding. It's been tough but worth the fight and the entire family remains strong. Little Alessandra seems to be the strongest of the bunch, LOL. The grandmothers missed a lot of work because we didn't want to take Alessandra's little brother to the hospital for the long days so they stayed at the house until we returned from her treatments then they shot off to work. Friday was the last day of heavy treatments and now we start treating her at home by giving her three shots a week. We still have to monitor her for side effects, continue to take her in for regular scans of her organs to see if cancer pops up anywhere, and watch her skin to see if there are ANY changes. All in all a small price to pay if the cancer never manifests itself again. I think we've made a decision to remove every mole on her body once she goes back in for the, I hope to God, final surgery. The melanoma can manifest itself in moles much easier than in other areas of the skin and considering what she's already been through, I'm not leaving ANYTHING to chance. Some may think I'm crazy and this may be going too far but you wouldn't understand until you went through this. The odds of her having to go through this were astronomical but it happened. I'm not leaving it to chance and as another member in the forum reminded me, drastic times call for drastic measures. Again, thank you all and I will continue to keep the thread updated for those interested in our fight.
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